The Beauty in Breaking by Michele Harper

50043108._SX318_SY475_Michele Harper is a female, African American emergency room physician in a profession that is overwhelmingly male and white. Brought up in Washington, DC, in an abusive family, she went to Harvard, where she met her husband. They stayed together through medical school until two months before she was scheduled to join the staff of a hospital in central Philadelphia, when he told her he couldn’t move with her. Her marriage at an end, Harper began her new life in a new city, in a new job, as a newly single woman.

In the ensuing years, as Harper learned to become an effective ER physician, bringing insight and empathy to every patient encounter, she came to understand that each of us is broken—physically, emotionally, psychically. How we recognize those breaks, how we try to mend them, and where we go from there are all crucial parts of the healing process.

At the highest ranks (doctor, professor) medicine is still a very white field, so I was excited to pick up this memoir by an African-American ER doctor, especially because there was a bunch of buzz around its publication.

The title is apt, as one could say that Harper has “broken” several times in her life. While her family situation looked great from the outside – a doctor’s family in a big house – it hid how horrifyingly abusive her father was, mostly to her mother. She managed to go to medical school herself, fell in love and got married, only to have her husband leave her right before moving to a different city. We follow her as she works at different hospitals and focuses on different parts of the job – administrative, patient care – as she comes to terms with it all.

I can’t go any farther in this review without mentioning that this was a buddy read with the wonderful Louise at the blog A Strong Belief in Wicker. She’s an emergency department doctor in Australia so we had a wonderful time dissecting the text on a medical level along with discussing Harper’s life experiences.

The most solid pro for The Beauty in Breaking is the writing. Some turns of phrase are beautiful, and she’s eloquent when talking about how racism in the medical system has affected her personally, as well as her patients. On that more surface, literary level I have little to complain about.

When it comes to medicine I have questions, though. There are some basic errors (for example, the Glasgow Coma Scale is scored 3-15, not 1-15) so I’m guessing the text wasn’t proofread for medical accuracy. Some of the patient scenarios didn’t make sense – why wasn’t a nurse called in to help with a particular procedure? Why is she ordering a head CT for a run of the mill headache?

While most of the patient stories are interesting and informative, several feel unrealistic. One conversation felt a roleplay scenario that’s part of my training as a medical interpreter – everything clearly said in logical order, with no meandering or backtracking or extraneous information. I’m guessing it was a composite patient, but even composite patients should talk like real people, right?

Harper finds peace via yoga, meditation, and Buddhism, which I’m glad for. I do yoga, too. But I don’t need to read detailed descriptions of her yoga class, and I was surprised that she talked to patients about their “spirit” as much as she did. I’m all for wellness and health in a general sense, but this tipped over into “woo-woo” too much for my liking.

All in all The Beauty in Breaking does a great job discussing certain issues beautifully, but if you’re in medicine yourself details will certainly needle you.

Thanks to Riverhead Books and Edelweiss for providing a review copy.

When We Do Harm: A Doctor Confronts Medical Error by Danielle Ofri

53625428._SY475_Patients enter the medical system with faith that they will receive the best care possible, so when things go wrong, it’s a profound and painful breach. Medical science has made enormous strides in decreasing mortality and suffering, but there’s no doubt that treatment can also cause harm, a significant portion of which is preventable.

Drawing on current research, professional experience, and extensive interviews with nurses, physicians, administrators, researchers, patients, and families, Dr. Ofri explores the diagnostic, systemic, and cognitive causes of medical error. She advocates for strategic use of concrete safety interventions such as checklists and improvements to the electronic medical record, but focuses on the full-scale cultural and cognitive shifts required to make a meaningful dent in medical error.

4.5 stars

So many things can go wrong in modern medicine, from misdiagnosing a disease to administering the wrong medicine with disastrous results. While there’s all kinds of research about medical error most of it concentrates on procedural errors in inpatient settings, such as doctors forgetting to wash their hands before approaching a patient’s bed. The literature ignores that most medical care is given in outpatient settings (doctors’ offices, acute care) and many, many errors take place when a doctor tries to figure out what’s wrong with you in the first place.

Add in mistakes caused by the computerized charting system, exacerbated by poor hand offs, and ignored by know-it-all doctors and we have a mess. Ofri leads us through it all in her approachable, engaging, and beautifully written style.

Here are some things I learned:

  • According to one study (everything is clearly end noted, by the way) over 80 percent of errors are related to a problem in doctor-patient communication. Ofri points out that nearly every error she reviewed for the book could have been prevented, or had its harm minimized, had there been better doctor-patient communication.
  • Capitalism in health care messes up so much stuff. Electronic medical records started as a billing system. Diagnoses are connected directly to billing codes, and there is no billing code for uncertainty. If there’s a set of interrelated problems the doctor has to pick one as the diagnosis, risking that later doctors won’t grasp the complexity of the issue.
  • Don’t get me started on malpractice lawsuits.
  • Procedural errors can be fixed with checklists, but diagnostic errors are cognitive errors, and “fixing” how a doctor thinks is much, much harder.
  • Hospital culture matters. Do the nurses feel comfortable speaking up when they see something wrong? Are patients’ families listened to or dismissed?
  • Many proposed solutions assume slow, methodical thinking when much of what doctors do is in the moment, under time pressure.

I love Ofri’s writing style – suspenseful narrative nonfiction when going through a case, introspective and insightful when discussing her own experience with error.

There are days when I envy Sisyphus: at least it’s the same stinking boulder he’s pushing up the hill every day. For a doctor, it’s a sea of boulders, any one of which – if missed – could come crashing down on one of my patients. Or on me, in the form of a lawsuit.

Make no mistake, many cases in this book are hard to read. A wife watching her husband die before her eyes without the medical staff doing anything to stop it. Mistreatment of a burn victim leading to his death, despite the efforts of nursing staff to get him better care. But the last couple of chapters give us hope, as well as concrete things a patient and their family can do to prevent medical error. Websites, professional organizations to contact, laws to be aware of, how to word requests to doctors, it’s all here.

This is my favorite Ofri book to date, which is saying a lot. A must read if you have any kind of interest, and a natural follow-up to The Checklist Manifesto as Gawande only scratches the surface.

Thanks to Beacon Press and Edelweiss for providing a review copy.

Who Says You’re Dead? Medical and Ethical Dilemmas for the Curious and Concerned by Jacob M. Appel

46221669._SY475_Drawing upon the author’s two decades teaching medical ethics, as well as his work as a practicing psychiatrist, this profound and addictive little book offers up challenging ethical dilemmas and asks readers, What would you do?

In short, engaging scenarios, Dr. Appel takes on hot-button issues that many of us will confront: genetic screening, sexuality, privacy, doctor-patient confidentiality. He unpacks each hypothetical with a brief reflection drawing from science, philosophy, and history, explaining how others have approached these controversies in real-world cases. Who Says You’re Dead? is designed to defy easy answers and to stimulate thought and even debate among professionals and armchair ethicists alike.

Review:

3.5 stars

I wasn’t sure if I should pick up this book, but when I saw that the author is not only a practicing psychiatrist but also a bioethicist and attorney, I couldn’t resist.

Appel looks at 79 dilemmas, some rare (can a millionaire advertise for a new liver?) to situations many of us will face (decisions regarding end of life care). Each case is introduced in a succinct vignette and followed up with a reflection covering legal, ethical, and personal issues that may affect the decision made. It truly is a reflection – Appel doesn’t rule for one side or the other, and he’s sure to mention factors that could make a seemingly off-putting choice rational. The setup gives you a moment to sit and reflect on what you would do in that situation. If a patient revealed that he’s gotten away with murder, would you report it to the police? Would you give someone on death row a liver transplant? What do you do when the sisters of a dying patient disagree about treatment?

The situations themselves are crafted with care. Some are edge cases pushing beyond settled law, some straddle an ethical line, and others show the most sympathetic patient for a particular treatment or intervention. While the vignettes are fictional (doctors Scarpetta, Hawkeye, and Jekyll make appearances) they’re based on actual people and cases, mostly in the US and UK. If you’d like more info there’s a robust appendix pointing to related papers, articles, and books for each dilemma.

With the heavy and at times disturbing medical content it’s not a book I can recommend to everyone, but I found it fascinating. It helped clarify (or occasionally muddy) my thinking about these ethical issues, and pointed me towards some that I didn’t even know existed. Did you know that with gene editing technology it may be possible to use ancient DNA to bring a Neanderthal to term in a human woman? It’s creepy and seems like an absolute no-go, and while Appel leans heavily in that direction he does imagine a semi-apocalyptic scenario where it might make sense.

I had small quibbles with two scenarios. One struck me as slightly ableist and used small d deaf to refer to capital D Deaf culture and people. The other talked about wrongful birth, where a doctor is negligent tying tubes and the woman becomes pregnant and ends up giving birth to a child, her fifth. Juries find it difficult to award damages for having a healthy baby, wanted or not, but the discussion didn’t touch on ways that settlement money could help the family meet the unexpected expenses of raising another child, not to mention psychological impacts. The other scenarios offer nuanced thoughts so this one felt out of place.

Those are only two small concerns, though – overall I found Who Says You’re Dead? fascinating and engrossing. I put it down now and then to take a breath – who wouldn’t after delving into the ethics of full-body transplants? – but it’s a compulsive read for medical nonfiction fans and armchair ethicists.

Thanks to Algonquin Books and Edelweiss for providing a review copy.

All That Remains: A Renowned Forensic Scientist on Death, Mortality, and Solving Crimes by Sue Black

9781948924276_23ebfDame Sue Black is an internationally renowned forensic anthropologist and human anatomist. She has lived her life eye to eye with the Grim Reaper, and she writes vividly about it in this book, which is part primer on the basics of identifying human remains, part frank memoir of a woman whose first paying job as a schoolgirl was to apprentice in a butcher shop, and part no-nonsense but deeply humane introduction to the reality of death in our lives.

She recounts her first dissection; her own first acquaintance with a loved one’s death; the mortal remains in her lab and at burial sites as well as scenes of violence, murder, and criminal dismemberment; and about investigating mass fatalities due to war, accident, or natural disaster, such as the 2004 Indian Ocean tsunami. She uses key cases to reveal how forensic science has developed and what her work has taught her about human nature.

Review:

As is probably well established by now I love medical nonfiction so I was excited to pick this book up, especially because the publisher compares Black’s writing to Caitlin Doughty and Mary Roach. When I think of Doughty and Roach the first word that pops into mind is “funny”.

It’s unfortunate because while this book is many things, it’s not funny.

From the beginning it’s clear that Black is not a forensic pathologist, determining causes of death via autopsy, nor an overly science-y person all together. Her first job was at a butcher shop and she carried the experience forward, studying anatomy in college and becoming a forensic anthropologist concentrating on the bones of the deceased.

The first third of the book reads like a memoir. In addition to telling us about her start in the field Black muses on the nature of death, the meaning of identity, and discusses the last days of three family members in great detail. There’s nothing wrong with this per ce, but it’s a hundred pages in the front that’s completely separated from what I thought I was getting – crime! Analyzing bones! Maybe some gory stuff! If you don’t know what’s coming you may be tempted to give up here.

Around a third of the way in we finally get into some cases and the narrative takes off. A lot of Black’s work revolves around disaster victim identification, or DVI. She has gone all around the world to help return those killed in war or disaster to their loved ones, from Kosovo to Thailand. As you can guess she sees the aftermath of horrific events, and the stories are quite touching (as well as possibly triggering, fair warning). I love that she talks about the cognitive and emotional difficulties of the job and the strategies she uses for her own mental health.

Luckily not every case is heartbreaking in the here and now. Black was on a BBC show where, along with a team of fellow scientists, they examined remains of people who lived hundreds of years ago in an effort to figure out who they were and how they died. She speaks of the interesting people she meets as part of her work in a university anatomy department, and delicate but not awful experiences like giving a potential full body donor a tour of the cadaver lab in use. And there are some stories from court, including the surreal experience of giving testimony and having no idea what to expect from either the prosecution or the defense.

I admire the work that Black has done over the years, from teaching to disaster response, from the BBC show to founding an anatomy lab.  She also gets love because she shouts out the interpreters her team worked in with Kosovo and recognizes to the mental and emotional toll of communicating the words of those who have been through such horrors.

But when it comes down to it the book is split into two parts – memoir and philosophy in the first 100 pages, and your standard forensic nonfiction in the rest.  The accounts of her parents’ deaths can be skipped over completely with no loss, so I wonder why they’re given so many pages in the first place.

The last two thirds make for a solid, but not outstanding, addition to a shelf about death. Just know that you can gloss over the aforementioned sections and you won’t miss a thing.

Thanks to Arcade and Edelweiss for providing a review copy.

When Death Becomes Life: Notes from a Transplant Surgeon by Joshua D. Mezrich

9780062656209_56b54At the University of Wisconsin, Dr. Joshua Mezrich creates life from loss, transplanting organs from one body to another. He examines more than one hundred years of remarkable medical breakthroughs, connecting this fascinating history with the inspiring and heartbreaking stories of his transplant patients. Combining gentle sensitivity with scientific clarity, Mezrich reflects on his calling as a doctor and introduces the modern pioneers who made transplantation a reality—maverick surgeons whose feats of imagination, bold vision, and daring risk taking generated techniques and practices that save millions of lives around the world.

When Death Becomes Life also engages in fascinating ethical and philosophical debates: How much risk should a healthy person be allowed to take to save someone she loves? Should a patient suffering from alcoholism receive a healthy liver? What defines death, and what role did organ transplantation play in that definition? Mezrich’s riveting book is a beautiful, poignant reminder that a life lost can also offer the hope of a new beginning.

Review:

Books by doctors who wield scalpels are some of my favorites, and Mezrich does a great job introducing the reader to the history and current practice of transplant surgery.

The good:

  • This is not a comprehensive history of transplantation, nor a memoir, nor a collection of patient stories.  It’s equal parts of each, allowing us to get an overview of the field in a personal, relatable way.
  • Transplant surgery is amazing, and Mezrich obviously loves his job and sharing that wonder and excitement with us.  It’s almost like he’s going, ‘Look!  Isn’t this cool?’ And it is.
  • The pioneers of the field, like most doctors in the 1960s and 70s, were men, so I appreciate that he takes the time to acknowledge a woman who is leading the field today and has some bad ass stories of her own.
  • The pacing is good and the switches between history, patient stories, and his training are well done.  I never thought, ‘go back!’ or, ‘ugh, history again’.  It all fits together.
  • Mezrich doesn’t shy away from ethical issues. Some of the first donors didn’t give consent, exactly, and organs were taken from people who died in prison as a matter of course.  When the field was first getting established there wasn’t even an accepted definition of brain death.  Not all the controversy is in the past – do you give a new liver to an alcoholic?  How much risk do you let a living donor take on in order to save their spouse?
  • Overall the tone is upbeat.  He doesn’t tear our hearts out or leave us in suspense about the outcome of a case, which I appreciate.  My eyes did leak a bit while reading the chapter about donors because the details are beautiful and touching. For example, before starting the operation to procure organs the doctors, nurses, ICU team, and other staff that took care of the patient will pause and say something about the donor.  Often they’ll read a poem or express thoughts from the family, and many will have tears in their eyes as they start.
  • There are no spiels about how everyone should donate their kidneys or anything like that.  He accepts organs as they come, and always with a sense of gratitude and respect for the donors.
  • The author seems like a nice guy which is saying a lot, because there are bunches of surgeons who write books that don’t seem like nice guys.  He acknowledges the rest of his team and thanks them often, as well as share funny, self-deprecating stories.

The not-so-good:

  • As much as I enjoyed this book (a lot!) I’m not sure it will stick with me.  It’s missing that ineffable something that screams four star read.  3.5 stars, though I may bump it up later.

If you like books about medicine, look forward to the Wellcome Prize longlist, or are just curious about transplantation, you’ll want to pick up When Death Becomes Life.

Thanks to Harper and Edelweiss for providing a review copy.

The Andromeda Strain by Michael Crichton

18726080The United States government is given a warning by the pre-eminent biophysicists in the country: current sterilization procedures applied to returning space probes may be inadequate to guarantee uncontaminated re-entry to the atmosphere. Two years later, seventeen satellites are sent into the outer fringes of space to collect organisms and dust for study. One of them falls to earth, landing in a desolate area of Arizona. Twelve miles from the landing site, in the town of Piedmont, a shocking discovery is made: the streets are littered with the dead bodies of the town’s inhabitants, as if they dropped dead in their tracks.

Review:

While I’ve watched Crichton before (ER, Jurassic Park) I hadn’t read any of his novels.  The Andromeda Strain is a natural entry point for me – medicine! science fiction! – and I ended up really liking it. The story is easy to sum up: the US government searches for organisms in space… and finds them.

The good:

  • The plot starts coming and it just keeps coming.
  • Medicine and doctors are important in figuring out what the Andromeda strain is and I got a kick out of thinking about diagnoses along with the doctors.  In that sense it’s puzzle mystery, and we get much of the info needed to reason things out as the story moves along, often in primary source format.  Huzzah for MDs writing fiction!
  • The book was written almost 50 years ago and it’s interesting to see what aged well and what didn’t.  Many of the medical gadgets still feel high tech while the computer references come off as quaint.  I don’t hold this against Crichton, quite the opposite, it strikes my fancy.
  • Andromeda StrainWhile the writing isn’t amazing it fits the mold aimed for, namely narrative nonfiction of a past event many people may have forgotten or never known about.  In that sense it reminded me of Command and Control.
  • Despite that the story doesn’t take itself too seriously.  There are a couple of moments I said “Oh.” along with a character, and there are some laugh out loud funny lines as well.  And the “References” listed at the end are a fun touch.
  • Crichton respects the reader.  He hints and points at things obliquely for us to figure out… and lets them be.  No knocking facts over our heads, no “did ya see that there, hmmmm?”  When a writer respects the reader I’m much more likely to respect them.

The not-so-good:

  • Not a lot of time is spent on characterization.  The space given is used well, but I’d like to see more.
  • Major Bechdel test fail, and I don’t remember a single character of color.  The 1971 movie took steps to correct this, making one of the scientists female and casting several people of color.
  • The “Odd-Man Hypothesis” is stupid idea and needs to die like now.
  • The ending is abrupt and bound to annoy some people.

All in all an engrossing read, perfect for a lazy summer day, a plane ride, or breaking a reading slump.  Especially recommended if you’re into medicine, or science fiction with a side of thriller.

A Thousand Naked Strangers: A Paramedic’s Wild Ride to the Edge and Back by Kevin Hazzard

25111005A former paramedic’s visceral, poignant, and mordantly funny account of a decade spent on Atlanta’s mean streets saving lives and connecting with the drama and occasional beauty that lies inside catastrophe.

In the aftermath of 9/11 Kevin Hazzard felt that something was missing from his life—his days were too safe, too routine. He signed up for emergency medical training and became, at age twenty-six, a newly minted EMT running calls in the worst sections of Atlanta.

Combining indelible scenes that remind us of life’s fragile beauty with laugh-out-loud moments that keep us smiling through the worst, A Thousand Naked Strangers is an absorbing read about one man’s journey of self-discovery—a trip that also teaches us about ourselves.

Review:

Being an EMT is a crazy job.  It’s your duty to keep people alive long enough to get to the hospital.  Sometimes they’re dead before you arrive at the scene.  Other times it’s a spry-looking man complaining about a toothache.  And sometimes you drive past the address you were given because the shooting hasn’t stopped yet.

Hazzard joined this world for ten years and takes us along for the ride.  A word of warning for the squeamish – there’s a fair share of gore and gallows humor, and know that the nature of the job doesn’t lend itself to overflowing empathy.  I didn’t bother me but I work in medicine so your mileage may vary.

The writing is good and the crazy stories are indeed batshit crazy.  Hazzard gets at the soul of the job when he writes,

Medics don’t have to be heroic or tough or even good people.  They simply have to enjoy the madness…. [It’s] a willingness to walk in unprotected when we clearly should walk away.  A desire to take part but just as often to bear witness.

But mainly he does it

Because it’s fun.

I listened on audio and am so glad I did – Hazzard is a natural storyteller and George Newbern does an amazing job with the narration.  He gets all the jokes, the pauses and nuances right on, to the point that I thought the author was reading his own work.

A Thousand Naked Strangers may not be for everyone but I really enjoyed it – a nice addition to my first responder memoir shelf.

The Language of Kindness: A Nurse’s Story by Christie Watson

36750090Christie Watson spent twenty years as a nurse, and in this intimate, poignant, and remarkably powerful book, she opens the doors of the hospital and shares its secrets. She takes us by her side down hospital corridors to visit the wards and meet her most unforgettable patients.

In the neonatal unit, premature babies fight for their lives, hovering at the very edge of survival, like tiny Emmanuel, wrapped up in a sandwich bag. On the cancer wards, the nurses administer chemotherapy and, long after the medicine stops working, something more important–which Watson learns to recognize when her own father is dying of cancer. In the Pediatric Intensive Care Unit, the nurses wash the hair of a little girl to remove the smell of smoke from the house fire. And the stories of the geriatric ward–Gladys and older patients like her–show the plight of the most vulnerable members of our society.

Review:

I’m not sure I can be completely fair reviewing this book – a section early on made me mad and ended up tainting it for me.  I’ll get to that in a minute.

But first, let me say that this is a well-written account of being a nurse in England.  Watson is drawn to some of the most emotional parts of the hospital – mental care, emergency, palliative care, neonatal intensive care – so expect heart-wrenching, as well as heart-warming, stories.  We watch Watson grow from a nursing student that’s duped by psych patients to a knowledgeable practitioner of one of the most noble arts.

I learn then that nursing is not so much about tasks, but about how in every detail a nurse can provide comfort to a patient and a family. It is a privilege to witness people at the frailest, most significant and most extreme moments of life, and to have the capacity to love complete strangers.

She talks how hard the work is – not only long hours and lifting heavy patients, but also the emotional toll.  I think most understand nursing isn’t easy, but I’m not sure we all appreciate how punishing it can be.

Compassion fatigue is common when caring for people who have suffered trauma. The nurse repeatedly swallows a fragment of the trauma—like a nurse who is looking after an infectious patient, putting herself at risk of infection. Caring for negative emotions puts her at risk of feeling them, too. And taking in even a small part of tragedy and grief, and loneliness and sadness, on a daily basis over a career is dangerous and it is exhausting.

As you can see the writing is good, and Watson’s stories are interesting and affecting… but I’m having a hard time getting over the fact that she throws my profession under the bus.

Many of you probably know that I’m a medical interpreter who helps non-Japanese speakers communicate with doctors and staff at a Japanese hospital.  It’s an important job because without correct and complete information about symptoms, family history, and so many other things it’s difficult to arrive at a correct diagnosis and provide adequate care.

Strike one – Watson calls interpreters “translators”.  It’s a distinction many don’t know (translators = written word, interpreters = spoken), so I can let that slide.  But then there’s strike two – she continues and says that in the emergency department they forgo calling qualified interpreters because using family members is faster and easier.

There are arguments against [interpretation] from non-experts; a suspicion, on the part of the nurses and doctors, that the words are being softened and not translated precisely, but it’s quicker than finding a[n interpreter].

There aren’t just arguments – it comes down to professional ethics and morals.  It is a health provider’s duty to provide the best care, and asking a daughter or brother to relay important, detailed, technical information under stress can go wrong in so many ways.  Interpreter codes of ethics state that even professionals shouldn’t interpret for friends and family, the conflict is so great.  Watson blithely dismissing the right of limited English speakers to have a qualified interpreter, to have access to critical information about their health in a language they understand, makes me see red. Looking at the importance she places on ethics in other parts of the book it becomes galling. Gah.

I admit it, I pretty much glowered at the chapters after that.  The writing and stories brought me around again so I can still recommend the book to fans of medical non-fiction, but not as wholeheartedly as I would like.

Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine by Michele Lent Hirsch

33931697Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system–a system where young women, especially women of color and trans women, are invisible.

And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.

Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Review:

Part memoir, part anecdote, and part research, Invisible does an amazing job looking at women society deems “too young” or “too pretty” to be sick.

The good:

  • The book is own voices for both health issues and being queer, which is awesome in its own right, and her conscientious efforts mean…
  • …it may be the most intersectional book I’ve ever read. Lent Hirsch mentions how each woman interviewed identifies and the range across race, sexuality, religion, and gender is amazing.  She goes into how each of these identities affect how a woman interacts with health care as well as friends, family, coworkers, and romantic partners.
  • This care is reflected in own voices reviews for Invisible.  My favorite is by Corvus who identifies as Queer, trans, and disabled.  They write, “This is the first book of this kind that I have read – that was not specifically about LGBTQ populations – that didn’t let me down.”  Their whole review is wonderful, go check it out here.
  • There’s a thoughtful discussion with several people about using the word “disability” in relation to themselves, and why they do or don’t embrace it.  There are many answers to this question and I like how so many different angles are covered.
  • Large sections of the text are straight from discussions the author had with women of all sorts.  While reading I thought – if a straight cis white man wrote this book he would only grab the juiciest quotes and summarize the rest through the lens of his own experience.  Lent Hirsch, however, has each amazing woman speak for herself and the book is stronger for it.
  • Even though my own experience as a patient is thankfully limited there are still parts that hit close to home.

    The new pharmacist was great.  He never commented on my looks or how my body made him feel.  What a low bar I was holding him to: he was ‘great’ because he didn’t harass me.

The not-so-great:

  • Only one thing here – I would have liked the 30,000 foot level writing to be stronger.  There are themes that could have been developed to make the book gel as a cohesive whole and their lack feels like a lost opportunity.

Invisible is an insightful look at what women of all sorts go through while dealing with chronic illness.  It’s a must read if you have any tiny bit of interest in the subject – I loved it.

Thanks to Beacon Press and Edelweiss for providing a review copy.

Better: A Surgeon’s Notes on Performance by Atul Gawande

1580804Atul Gawande explores how doctors strive to close the gap between best intentions and best performance in the face of obstacles that sometimes seem insurmountable. Gawande’s gripping stories of diligence, ingenuity, and what it means to do right by people take us to battlefield surgical tents in Iraq, to labor and delivery rooms in Boston, to a polio outbreak in India, and to malpractice courtrooms around the country. He discusses the ethical dilemmas of doctors participation in lethal injections, examines the influence of money on modern medicine, and recounts the astoundingly contentious history of hand washing. And Gawande gives us an inside look at his own life as a practicing surgeon, offering a searingly honest firsthand account of work in a field where mistakes are both unavoidable and unthinkable.

Review:

Medicine is unforgiving because every mistake could be a disaster.  Wrong prescription, wrong dose, wrong operation site, wrong treatment… any of these could kill a patient.  But how can you be error-free every time, never mind a job with so many technical details and judgement calls?

Perfection is impossible, of course, so Gawande looks at how doctors can improve their performance.  The three main sections cover diligence, doing right, and ingenuity, and while the stories are interesting only a few moments have stuck with me.  For example check out this cystic fibrosis doctor working with a teenager:

At school, new rules required her to go to the nurse for each dose of medicine during the day. So she skipped going. “It’s such a pain,” she said…. Warwick proposed a deal. Janelle would go home for a breathing treatment every day after school and get her best friend to hold her to it. She’d also keep key medications in her bag or her pocket at school and take them on her own. (“The nurse won’t let me.” “Don’t tell her,” he said, and deftly turned taking care of herself into an act of rebellion.)

Points of brilliance like this and the afterward with tips on how to become a “positive deviant” are my highlights.  Gawande’s writing is as good as ever but this isn’t as game-changing as The Checklist Manifesto. I’ll get back to you once I read Being Mortal. 😉